Elevate Lung Cancer Care - ALK+

Navigating life
with advanced ALK+ non-small cell lung cancer (NSCLC)

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Stay informed with ALK+ NSCLC resources


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Goals of treatment

  • It’s important to think about your treatment goals and talk them through with your doctor. Together, you can make an informed decision about the right course of action for you. Your goals are personal—and your treatment plan should be, too.
  • They may vary based on several factors, including: 
  • age Your age
  • care for children Whether you’re working or caring for children 
  • Milestone Milestones in your care and your life
  • Milestone If your cancer has spread
  • Milestone What treatments you’ve tried before
  • Work with your doctor to find an option that considers both your medical needs and your day-to-day priorities.

Treatment considerations for ALK+ NSCLC

With more treatment options available than ever, talk with your doctor about which is best for you.
What to ask your care team about ALK+ NSCLC treatment
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  • Will this treatment help shrink my cancer and keep it from growing?
  • Will this treatment work against cancer that has spread to my brain?
  • Will it keep working for me even if my cancer develops new genomic changes (also known as resistance mutations) that can cause some treatments to stop working?
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  • Will I be able to stay on this treatment without it getting in the way of my daily life?
  • Is this treatment designed to stop the ALK fusions causing my cancer without affecting the parts of my body that keep me well?
  • Will the side effects be manageable enough for me to stay on the treatment while keeping up with my normal routine—without major changes to my daily life?

Find answers to
common questions in
ALK+ NSCLC


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If your current ALK+ NSCLC treatment stops working, you may have options

  • Targeted therapies don’t all work the same.
  • Some may stop working or cause disruptive side effects
  • If your cancer changes, your treatment may need to change too
  • The goal is to stay on a treatment that continues to help over time. Communicating with your care team is important. 
Don’t hesitate to speak up. Your care team is there to help.
Michael, living with ALK+ NSCLC, and his daughter
Michael, living with ALK+ NSCLC, and his daughter

Work with your care team to manage side effects

  • Living with ALK+ NSCLC can be challenging—physically, emotionally, and in daily life.
  • Side effects can be mild or more disruptive and may affect your daily life. Tell your doctor how you’re feeling so you can manage them together.
  • Through conversations with your doctor, you can: 
  • Work to find a plan that fits your lifestyle
  • Address your treatment goals and priorities
Educate yourself as much as possible, learn about the disease, and be a visible and vocal advocate for yourself. —Kirk, lives with ALK+ NSCLC
Kirk

Stay connected for future tips on living well with ALK+ NSCLC


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It’s okay to ask for a second opinion

The right treatment starts with asking key questions—so it’s okay to seek another opinion, speak up, and look for a plan that fits your life and goals.
It’s your health so you should feel no guilt about getting second opinions. —Brandi, lives with ALK+ NSCLC
Brandi
Matt, living with ALK+ NSCLC, and his son
Matt, living with ALK+ NSCLC, and his son

Advocating for yourself is one of the most powerful things you can do

Start the conversation—your care team is there to answer all your questions.
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  • What to ask about treatment
  • What should I expect from treatment?
  • Is there therapy designed for my specific cancer?
  • What side effects might impact my daily life?
  • Is there a clinical trial that may be right for me?
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  • What to ask to stay informed
  • How might my cancer change over time?
  • Do the potential treatment benefits outweigh the side effects?
  • Can I get a second opinion from a doctor who has treated ALK+ NSCLC?
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  • What to ask about next steps
  • What should I know about diagnosis and disease progression?
  • How do resistance mutations affect my treatment options?
  • What are common treatment challenges I might face?

Find strength through support

Below you'll find online support for ALK+ NSCLC from patient advocacy organizations
Peer-to-peer support tailored to people living with ALK+ NSCLC, plus educational tools and events.
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  • Lungevity
  • Find survivorship resources, caregiver support, and tools for living with lung cancer.
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  • GO2 Foundation
  • Access a support helpline, treatment center directory, and trusted education.
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  • LCFA
  • Learn more about lung cancer research and efforts to improve patient outcomes.
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  • LCRF
  • Support and education focused on research and patient empowerment.
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Downloadable resources for ALK+ NSCLC

Discussion Guide
Survivorship Guide
Glossary
FAQ

Downloadable resources for ALK+ NSCLC

Discussion Guide
Doctor Discussion Guide

Get the guide download
Survivorship Guide
Survivorship Guide

Get the guide download
NSCLC Glossary
NSCLC Glossary

Learn the terms download
FAQ
Frequently Asked Questions

Get the facts download

ALK+=anaplastic lymphoma kinase–positive; NSCLC=non-small cell lung cancer.